Songs for Lexi

Songs for Lexi

Endocrinologist

I took Alexi to see an Endocrinologist on the advice of a Neuro in our N. Bergen practice who advised us against trying out of the box herbal remedies (ie: Adrenamin, Adrenogen) without first checking as to possible medical reasons for Alexi's high cortisol in her blood test.... makes sense, right?  ok...

 

History:  BB routinely tests kids' cortisol as part of their blood tests they ask you to run - our Dr. Rosen ran this test and found her level to be high (see previous posts) at 27, and then recently it climbed to 33! 

 

So, I made an appointment with Dr. Klein @ Hackensack's Molly Center for 7/20/15.  Cortisol level of 33 is not enough for her to make diagnosis however - she did check Alexi out for any outward appearance of adrenal issues:  no fatty deposits, no early signs of puberty, no acne, no moon shaped face, no weight gain, no face discoloration, no high blood pressure.  Cortisol blood test only measures "free" versions of cortisol - would need all supplements given before cortisol was tested, when 1st tested, when 2nd tested and when tested using 4x/day saliva test especially 12am test to properly examine cortisol and test for any possible interactions with supplements as to the causation for high level or to test for Addisons, Graves and possibly any small tumors or issues...  Endocrinology is very detail and chart oriented....  

 

Sheesh - figuring out Autism is like going back to school, right?  And I wasn't a naturally-oriented science student.... BUT - I'm finding if you combine science with your gut feelings - you end up being able to make decisions that "feel right".... 

 

In this instance - here's my additional information:  all the autistic kids I know have this same type of "whirring" motor thing our daughter has, many of them cannot sleep, cannot stop.  They vacillate between seeming very low energy (like at special needs basketball where they all seem very droney oddly enough - all the other parents and I claim our kids never are this still at home - they are all over the place) to jumping, climbing, stimming, high energy running all over the place.  My "gut" feeling is that Alexi's high Cortisol level is due to her Autism condition and not something physically "wrong" or the endocrinologist would have seen some clinical physical signs....  Rather than go crazy working on this - I'd rather go with my plan and work toward the holistic cleaning of her system and compare how she seems after she's very, very clean... 

It's our suspicion that as an infant -- her body went into overdrive protection mode when she was so small and weak and was inundated with exposure to too many things at once.  Her early history was that she couldn't kick the bilirubin on her own and was jaundiced to the point where she had to go back to the hospital under lights... then she couldn't defend herself against simple cold germs and contracted RSV and was hospitalized for 5 days after which her doctor insisted we vaccinate her after all she'd been exposed to in the hospital - more more more into her weak system -- then BANG - she evolved into a kid that never got sick, that seemed un-sooth-able, crying and screaming were her main methods of communication... and so it went....  so perhaps her body snapped into overdrive and here she still is..... whirring and whirring and moving needing constant input and activity.... 

 

Currently it is very hard to have her home without summer school session, camp starts in 2 weeks... also hard not to depend on what she craves - input from computers, from TV (she's flicking around on the tv right now with the remote - not watching but flicking between scenes back and forth - hard to imagine what her brain is doing to her right now).....BUT -- it's important not to give in to this frustration and to keep going.....  We have seen her improve so much since BB and hope to do it again next summer.  The natural approach to eating Paleo style, to cleaning out the system using herbal treatments, getting her back to basics -- helping her get balanced -- that's what's calling right now.... 

 

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