Songs for Lexi

Songs for Lexi

Background Info/Links

WELCOME TO OUR BLOG! 

 

If you are here, chances are you have some interest in our daughter, Alexi's, story.  

 

Well, first of all, thank you for your interest...  we are blogging so that interested folks can follow our journey as we raise funds and have Alexi start and follow the Brain Balance program. We are currently fundraising and have not yet started the Brain Balance program as of January 2013.  Our goal has been to start this summer, 2013. 

 

In order to defray some of the costs of this program, Pat came up with the idea of a fundraiser!  He put together a compilation album, Songs for Lexi, and we are currently selling copies of this special CD!  See below for details! 

 

There are a couple links I'll post here which can give you some background:

 

The first is a link to an article which was published in the South Bergenite on 11.29.12:

 

RUTHERFORD COUPLE PROMOTES CD TO FUND AUTISTIC CHILD'S BRAIN BALANCE PROGRAM
Thursday, November 29, 2012 Last updated: Thursday November 29, 2012, 2:06 PM
BY KELLY NICHOLAIDES  STAFF WRITER  South Bergenite
http://www.northjersey.com/news/181314691_Rutherford_couple_promotes_CD_to_fund_autistic_child_s_Brain_Balance_program.html?fb_comment_id=fbc_445414855517841_12915140_445620905497236&mobile=1&ic=1#f23d1a62ac

 

BRAIN BALANCE WEBSITE:
http://www.brainbalancecenters.com/

 

SONGS FOR LEXI - OUR WEBSITE
http://www.songsforlexi.com/
 

TO PURCHASE A FUND RAISING CD:
http://www.cdbaby.com/cd/songsforlexi

 

And below please find our FIRST POST which was written 2 weeks before our first fundraising event which was held at Redd's Restaurant and Bar in Carlstadt NJ on December 1st, 2012. 

 

NOVEMBER 19, 2012

Alexi Rain Cioffi, almost 7, lives in Rutherford with her typically developing sister Kyra, 9, and her parents Annika and Pat Cioffi. 

She has autism spectrum disorder and is fortunate to be able to attend a wonderful full-day school program in Franklin Lakes called Colonial Road School, where she has full-day one-to-one instruction for her special needs. 

She was first diagnosed at 2 years old with the help of her pediatrician, Dr. Grace Becz of Rutherford Pediatrics.   She was formally diagnosed at Hackensack Medical Center and went on to have an intense year of early intervention at home from 2-3 years old.  She then began a full day 1:1 autism program at 3 years old.  Today Alexi struggles with increasing sensory issues, behavioral issues, communication issues and social issues.  She “scripts” most of the day which means that she repeats lines from books she’s read, TV shows she’s watched, over and over and over.  She has very little of what they call “expressive” language and it’s very frustrating both for her and for us and people she comes into contact with when she cannot answer the simplest of questions much less have a conversation.

From the time of her first diagnosis, our family has been on the journey of trying to find the answers where there seem to be none.  A friend sent me a link to the Brain Balance program.  I bought the book that describes the program, Disconnected Kids by Dr. Robert Melillo and was convinced his program was one we should try.  Pat and I (Annika) have attended the open house at the Summit location of Brain Balance, we have just attended a lecture at Summit High School given by Dr. Robert Melillo and were approached by parents of kids who have successfully gone through the program just last week. 

We are not sure Brain Balance will improve our daughter’s condition, but at this point we know we have to try it.  We have always suspected her condition is largely neurological in nature.  The Brain Balance program speaks to us and we are eager to try it, but if it doesn’t work for her, we won’t stop until we find something to help our daughter.  She is a sweet little girl with a big heart.  Everyone who meets her is charmed by her sweet nature and just falls in love with our little girl.  We love her and her sister so much and are excited to raise enough funds to start this program and whatever else we need to do to help her. 

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