Songs for Lexi

Songs for Lexi

HBOT update & election's potential impact on Autism Epidemic...

Sorry to report that HBOT thus far has not worked for Alexi.  We are not seeing positive changes... yet.  

 

Here's what I do know:  

I know that we rid her body of excess YEAST, I know that we have whittled her diet to exclude excess SUGAR and CARBS, I also know we are not as strict as we should be about cow's MILK which should be totally eliminated but that its inclusion in her diet has been much reduced.  I also know that she has been receiving one hour sessions of more concentrated OXYGEN for about 2 months now and that we have not seen much improvement. 

 

There is almost no limit to the things we can spend our money on trying for her.  She is almost 11.  I am not giving up - believe me -  but am trying to be realistic.  Autism impacts a family in so many ways.  For our family, it mostly impacts our ability to truly rest.  After a jam-packed holiday week which started with my birthday - which led to Thanksgiving - and the impending rush towards all things Christmas -- this being the Monday morning-after brought up this reflection... 

 

Our evenings and weekends are largely spent either IGNORING or DEALING with the fact that Alexi is up early many mornings (like at 3am), laughing without reason, jumping on her bed and from windowsills, blasting her ipod, craving movement and swinging constantly and scripting incessantly.  She cannot help what she is doing, of that I am convinced.  Her true nature is sweet and loving, mixed with humor with a teaspoon of rebellion and a tablespoon of sassy tossed in. The truth is that her brain and body are at war and that the urges she feels and reacts to are all due to the fact that she is trying to RIGHT herself, trying to SOOTHE herself. This I know to be true and more than anything else, and our ultimate goal is to help her feel okay within her own body.  

 

This Thanksgiving break was hard, there, I said it.  Trying to keep Alexi from waking up sleeping guests, trying to keep her off the computer, trying to feed her properly, trying to host and socialize and relax is hard work for our family.  It dawned on me how rare it is for us to sit and watch a movie together, because the guilt ratio is so high.  Indulge one daughter and you end up ignoring the other one.  We do it by splitting up a lot, but my memories of lying around after a holiday during a school break, watching movie after movie and truly relaxing are old memories from my youth.  This is a rant - no doubt about it - believe me - I am thankful for our family, our friends, our home - I am truly blessed in so many ways and mostly grateful for my husband for the fact that he and I are extremely lucky to work so well together as a well-oiled unit when it comes to this friggin' autism.  Let me reiterate that I am not unappreciative for what we have - just tired I guess.  Tired of working hard to fix what we can, without feeling like this issue is getting the attention it needs from the "powers that be" I suppose.  Which leads me to the next section here...

 

The Autism epidemic and our election.  

 

WHEW what a whirlwind this campaign season and this election have been.  So much exposure of our nation's antiquated and ugly points of view...  so much disappointment displayed about our leadership's failings and our unhappiness and fear as a nation on display via social media... hearing about battling families heading toward holiday time.  It was hard for so many to see the good in others, so hard for many to go home on Thanksgiving and to mix with opposing viewpoints about our impending leadership. Which brings me to my silver lining in what I felt was a surreal mess of an election......

 

While watching Donald Trump's son, Barron, on TV, many of us parents of autistic children saw a child who seemed to have autism.  Once you have a child with autism, you can usually spot it in other children quickly... often faster than that child's own family can identify symptoms.  Trump has been quoted as saying that Autism is, indeed, a largely ignored issue of epidemic proportions.  And then, videos started surfacing of his son's autistic-like behaviors.  And quotes of Trump saying that he believes in vaccinations, but he believes in rescheduling them to be a lesser amount and more spread out.  And then, a glimmer of hope gleams through this messy election filled with hate and ugliness.  

 

Here is a video link example if you care to watch it:  

https://www.youtube.com/watch?v=yZAd5Pu9iw4

 

Many folks connected to Autism causation research have..... died.   My first entree into this was finding out about the death of Dr. Bradstreet.  I had watched the following 2013 Autism 1 conference video online, only to find out afterward while googling his name that this amazing, eloquent doctor, and father of an autistic son...... was dead.    

https://www.youtube.com/watch?v=NtRxBC3MUow

 

Here is an article about 50 mysterious deaths connected to autism research:  

http://truththeory.com/2016/06/26/50-holistic-doctors-have-mysteriously-died-in-the-last-year-but-whats-being-done-about-it/

 

So, heading to exercise this am to work off some stuffing/gravy!  

 

Listen, life is full of twists and turns, you live to 50, as I am proud to admit, and you see some things - good and bad.  

 

I am thankful to have this method of communication and I thank you for reading this rant, especially.  

 

Onward!

 

 

HBOT

We recently started Hyperbaric Oxygen treatments for Alexi.  Now that the footbaths show she is largely FREE of Candida Albans yeast overgrowth, (we continue to fight yeast overgrowth but with a natural product:

(https://www.nowfoods.com/supplements/candida-support-veg-capsules)

 

-- it was time to start what is commonly called HBOT short for Hyperbaric Oxygen - yeah - that thing Michael Jackson did but to a lesser degree.  

 

WHAT?  Are they crazy?  you might be thinking...  not so much - it is a commonly attempted intervention for autism - here's a link on TACA's website to explain it to you:  http://www.tacanow.org/family-resources/hbot-for-asd/

 

 

In order to track possible improvements due to this intervention, here is a list of things that have happened since we started HBOT:

9/23 was her 1st session - she is currently on 5th session as of this blog post:

 

-Answered "What did you have for lunch today?" during session quicker than I have ever heard her answer...

-Started wanting to brush her teeth herself (1st time) and several times since - started putting toothpaste on, brushing all by herself all without my suggesting she do this... (a new behavior!)

-Told me "I can't help it" again last night after she knocked down a painting.... she seems to have meant it was an accident and that she didn't mean it.  

 

Now - these could all be due to who knows what....  I record them here as well as in my files in order to share with whoever reads this who might want to try this method.  

 

More to come... stay tuned.....  and cross your fingers please................ 

in the light of the next day...

i am amazed and touched by so many facebook responses to my previous post... i am so lucky to have such support from my friends and family and from strangers who read this blog and forward it around so others can know their struggle is not their own, but is shared................   i had banged that blog-post out in my tired frustration in an effort to share one night's thoughts swirling around in my head...   

 

what i come away with  (many kind, supportive comments and a full day later) -- is that everyone has things they struggle with in their lives...  things they would like to fix and cannot.  cancer is not fair, autism is not fair, job loss is not fair, having to have 2 jobs is not fair, war is not fair, shootings are not fair, and the list goes on-------- so many struggles are part of our human experience....

 

i just keep coming back to the same feeling - HOW can we have so many new food ALLERGIES, so many cases of ADD, ADHD, AUTISM, THYROID issues, TURRETS, AUTO-IMMUNE issues, overwhelming amounts of OBESITY... so many STUDIES and no true answers as to the cause(s) of autism.  studies, studies, STUDIES are all i look at and research - but no answers - just suggestions to read more studies... and reasons why that study is wrong and this one is right....

 

i feel strongly that the research strides that have been made concerning AUTISM are not public enough -- they feel "bought" to me -- the underground movement is too large.... there are TOO many autistic children and there is NOT ENOUGH public progress given all the fundraising walks, all the places you can give, give, give, give.......bracelets you can buy, t-shirts, jewelry, car magnets, but for what?  simply put - there are not enough answers for me as Alexi's mom. how can we have a problem of epidemic proportions and not have much more than autism walks and study-tossing on facebook to go on?  

 

Time is ticking...  Alexi is growing quickly - the human brain completes development around the age of 25 - and in my opinion there is too much BULLSHIT to have too weed through....  so much, in fact, that i have witnessed many people decide to stop fighting, stop investigating and just give up...  they decide to just embrace their child's autism - love them for who they are and move on -- and that breaks my heart because how will we ever learn about how to help our children's children if we lie down now?  

 

i love Alexi don't get me wrong - i love her personality that shines through - her sweetness and her "sassiness" - her smile - her infectious laugh - her carefree ease she often displays in a house full 'o stress -- i love the fact that she is sneaky enough to steal gluten filled snacks from our locked cabinet - i love that she boldly lies to me with her cute, chocolate-smudged lips -- she is awesome --- but she is STUCK -- there is no way around that for me -- she is stuck in a world where preschool characters dance around, where visions in her head distract her so much she cannot have a simple conversation, she cannot make a real friend - she cannot read and understand a book - at 10 she still cannot brush her teeth properly - it will take her years to learn how to get along in our world - it will take her years to learn how to make change much less pay a bill - it will take years for her to learn how to take a shower alone and how to have some kind of job somewhere......  

 

Make no mistake - there are increasing amounts of kids like her in our schools, in our country, in other countries.... and all of them are growing toward our workforce and changing the future of our healthcare system and our social security and and and and and....   THIS is the true essence of the overwhelm that i feel at 2am.... and in a different way at 9:47am..... where is this going?  what are we going to do?  and who can really help me to help our daughter?   who is going to stand up and make public what we need to hear in order to make real strides to fix this, for our kids and for their kids?  

 

up since 2am

So much passes thru your mind when your kid wakes you up at 2am and won't go back to sleep.  Alexi has been doing so well with sleeping lately - the QiGong massage calms her down well and the change of season to fall usually helps...

 

But last night was one of those nights - up at 2 - bouncing around, playing her music, - so i went and gave her a melatonin and laid down with her for what i thought would be about 20 minutes for it to start working and help her drift off...  that never happened.  and as i shared her twin bed listening to her scripting away - i had time to think.

 

time to be so pissed off about autism, time to resent the fact that i have no one to help me know how to make her feel better - it's all just guesses, no one to turn to that i can really truly trust to make her life easier, to relieve this churning energy, these un-pruned synapses or WHATEVER this f'ing autism is after all...

 

so trying not to be mad at the world, I instead tried objectively to just observe her and it's so heartbreaking because my daughter can't help herself - she was wired beyond belief - repeating words she learned at 18 months over and over and over -- they say synapses don't prune when you have autism - so the brain holds onto every last thing and every memory is as fresh as the day you made it -- so she's scripting the night away mentioning aides she had at 3 years old like she just saw them yesterday (BTW Chickie - if you're reading this - you made her list - "Chickie - circle time!" )  It's exhausting, frustrating, and just so worrysome - as I watched her get up over and over to do her routine - up on the bookcase, over to the window, stand in the window, talk about the window, and then jump down, back to bed, rinse, repeat....  then another one - spin the globe, point randomly and say "What's that?" and answer with a word, repeat said word, say, "mommom, what's that?  what's THAT?  her pleading with me to repeat her chosen answer-word because getting me to say that word feels good to her somehow...

 

well - let's just say -- a night up with an autistic child prompts a lot of thoughts and frustration... the light of day is so much better - but i skipped coffee and i'm gonna try and grab a nap............ just felt like sharing.  

YEAST OUT

9/13/16 last week Alexi had her 2nd chiro adjustment where her muscles were loose (instead of as tight as guitar strings) and there was very little "out" as chiro's say.  This is an amazing change!  We have been taking her to the chiropractor for over 4 years but his adjustments could never stay in place...  

What's different?  Well, according to her footbaths, her body has let go of most of the yeast overload.  We are just about finished with the 3 month round of Diflucan, and when we do finish, we will continue with natural ways to combat the yeast build-up and continue giving her foods that don't feed-the-yeast like processed sugar and carbs.  The fact that her body is now most likely adjusting to its new normal and not spiking and dropping in a fight with yeast overload which seemed to affect her muscles is a good thing.

 

Stay tuned... 

 

If you are reading this, and are confused as to why we are eliminating yeast -- here is a wonderful blog post http://drhyman.com/blog/2010/05/12/can-autism-be-cured/ written by Dr. Mark Hyman who is the Medical Director at Cleveland Clinic's center for functional medicine...  - it explains our approach in a very clear way....

 

TODAY MOST PEOPLE BELIEVE that Autism is a genetic brain disorder. I’m here to tell you that this isn’t true. The real reason we are seeing increasing rates of autism is simply this: Autism is a systemic body disorder that affects the brain. A toxic environment triggers certain genes in people susceptible to this condition. And research supports this position.

Think about it. Rates of autism have skyrocketed over the years, from an estimated 1 child in 3,000 to just 1 in 150 kids today. Sure, wider criteria for diagnosis and better detection might explain some of it but not an increase of this magnitude.

Dramatic scientific discoveries have taken place during the last 10 to 20 years that reveal the true causes of autism, and turn conventional thinking on its head. For example, Martha Herbert, MD, a pediatric neurologist from Harvard Medical School has painted a picture of autism that shows how core abnormalities in body systems like immunity, gut function, and detoxification play a central role in causing the behavioral and mood symptoms of autism.

Recently I treated a 2 ½ year old boy named Sam. He was born healthy but diagnosed with autism after his vaccination for measles, mumps and rubella at 22 months.

Every child with autism has unique genetics, causes or triggers. And it is not usually one thing but a collection of insults, toxins and deficiencies piled on susceptible genetics that leads to biochemical train wrecks we see in these children.

When I first saw him, this little boy was deep in the inner wordless world of autism. Watching him was like watching someone on a psychedelic drug trip. So we dug into his biochemistry and genetics and found many things to account for the problems he was having.

He had very high level of antibodies to gluten. He was allergic not only to wheat, but to dairy, eggs, yeast, and soy — about 28 foods in total. He also had a leaky gut, and his gut was very inflamed. Sam was deficient in zinc, magnesium, and manganese, vitamins A, B12, and D, and omega-3 fats. Like many children with autism, he had trouble making energy in his cells, or mitochondria.

His amino acids — necessary for normal brain function and detoxification— were depleted. And his blood showed high levels of aluminum and lead, while his hair showed very high levels of antimony and arsenic, signs of a very toxic little boy. His levels of sulfur and glutathione were low, indicating that he just couldn’t muster the power to detox all these metals.  In fact, his genes showed a major weak spot in glutathione metabolism, which is the body’s main antioxidant and major detoxification highway for getting rid of metals and pesticides.

Sam also had trouble with a key biochemical function called methylation that is required to make normal neurotransmitters and brain chemicals and is critical for helping the body get rid of toxins. This showed up as low levels of homocysteine (signs of problems with folate metabolism) and high methylmalonic acid (signs of problems with B12 metabolism). He also had two genes that set him up for more problems with this system.

Finally, he also had very high levels of oxidative stress or free radical activity, including markers that told me that his brain was inflamed and under free-radical fire.

This may all seem complicated, but it really isn’t. When I see any patient, I simply work through the 7 Keys to UltraWellness (based on functional medicine) to see how everything is connected, create a plan to get to the causes of the problems, and then help each patient deal with all the biochemical and physiological rubble that those causes have left along the road.

To create a roadmap for recovery you just take away what’s bothering the patient and give his body what it is missing and needs to thrive (based on the individual’s biochemical uniqueness). Then the body does the rest. Here is the roadmap I used to help Sam recover.

Step 1: Fix His Gut and Cool the Inflammation There

This step included a number of different tactics including:

§  Taking away gluten and other food allergens

§  Getting rid of his yeast with anti-fungals

§  Killing off the toxic bacteria in his small intestine with special antibiotics

§  Replenishing healthy bacteria with probiotics

§  Helping him digest his food with enzymes

Step 2: Replace the Missing Nutrients to Help His Genes Work Better

In Sam’s case we:

§  Added back zinc, magnesium, folate, and vitamins A, B6, B12, and D

§  Supported his brain with omega-3 fats

Step 3: Detoxify and Reduce Oxidative Stress

§  Once his biochemistry and nutrition was tuned up, we helped him detoxify and reduce oxidative stress.

§  Improve nutrition, reduce inflammation, heal the gut, detoxify — this should sound familiar.

As I said before, the keys of UltraWellness can help, no matter what the disease or condition. Biology has basic laws, which we have to follow and understand. All the details of Sam’s story fit into these laws. We just have to dig deep, peel back the layers, and understand what is going on. When we do this the results are nothing short of miraculous…

After following a gluten-free diet and treating his gut for 3 weeks, Sam showed dramatic and remarkable improvement. He was getting back much of his language skills and showing much more connection and relatedness in his interactions.

After 4 months, he was more focused, unstuck and verbal.

After 10 months, his bowels were back to normal, he was verbally fluent, mainstreamed in school and he “lost” his diagnosis of autism.

After 2 years all his abnormal tests were normal including the high metals, gut inflammation and damage to his mitochondria and free radicals.

And more importantly, the child was totally normal. Not every child has such a dramatic recovery but many improve, and some improve dramatically using the approach of functional or systems medicine.

This is just the beginning. Read the full article on Why Current Thinking About Autism Is Completely Wrong.

To your good health,

Mark Hyman, MD

 

 

 

 

"I can't help it"

So the pharmacy incorrectly filled out the Diflucan (can u believe it?) and as a result she had a much lower dose than the doctor intended.  Even with that lower dose, she did seem to be getting rid of excess yeast as was evident from the repeated yeast dumps in her foot bath.  From Father's Day June 19 - August 3rd she had the light dose -- then we started with correct dosage August 4 to now.   

 

Lately she has seemed more aware of her surroundings...  more connected. Making more observations without prompting...  These are the changes we have noticed: 

 

1 - 8/9 we noticed a marked decrease in scripting on the way to the beach - she was almost silent in the car!  I found myself looking in the back seat to see if she had fallen asleep!  At dinner at a restaurant, she was her sweet version and there was very little scripting.  However, it did return the next day :(

 

2 - on 8/23 - after about 5 years of once monthly chiropractic adjustments which help her tremendously, when he did his usual pre-adjustment prep to see what was "out" - he noticed her neck was loose, not tight!  There was hardly any adjustment needed!  That has never happened in all these years...  

 

3 - today this morning 8/24 - she woke up early, seemed irritable, not wanting to eat a bowl of peaches, seemed mad there was no time for gf pancakes, and when i asked her to go upstairs and get her bathing suit on, and asked again, she kept flopping around on the couch not getting ready so I finally walked over to her and asked her, "what is the deal - why don't you go upstairs and get your suit we're gonna be late for camp" she ANSWERED ME in a small voice, "I can't help it"......................................................  She has NEVER said anything like this before!  And then, after being at camp 10 minutes or so she threw up, so I was called and I turned around to go got her... So she couldn't tell me she felt SICK, but she did tell me SOMETHING about how she felt inside - gave me some kind of clue of her inner workings and world ------

 

This is one of those days that mark a glimmer of hope that she is not what she looks like or sounds like - that there is a whole PERSON inside waiting to be reached.........rescued..........helped...........  I read the book "Carly's Voice" http://carlysvoice.com/  and Carly's journey impacted the way I think of Alexi -- Carly finally "told" her family that autism feels like ants crawling on your skin...  and she is completely frustrated that she can't communicate using her voice --- but Carly found a way to let her friends and family know the person she is behind the grunts, the stims, the noises....  So Alexi is right - she CAN'T help what she is doing, how she is acting....  underneath there just might be another version of her - if we can clear all these toxins for her and help revitalize her gut -- help her to finally just be............. to relax............. stop stimming all day................ stop watching the same video clips endlessly...................   oh should i dare to dream???

 

 

Diflucan update #2

 

 

UGH - here is a short video clip of a recent foot bath...  gross...  and notably thicker and denser than in baths prior to Diflucan treatment.  This video clip is from week 3 of treatment. 

 

Update on die-off: 

 

Apparently, according to her doctor, her reactions to Diflucan seem to be mild die-off symptoms.  He renewed her script and we are continuing on for another month! 

 

Things we've seen:

For a few days she appeared itchy, scratching often behind her right ear but there was nothing there... thankfully that side effect passed quickly and she no longer scratches there.  From what I've been told, yeast die-off feels like bugs under your skin...

 

Also she vomited 2ce this past Sunday.  When cleaning up after her, I took the mat outside to spray it with the hose. Later I saw remaining frothy yeast-lookin' stuff in our grass UGH..........................  It is coming out of her feet via foot baths (see video clip above) and also exiting via her digestive system.  

 

We filled and tossed around water balloons yesterday.  When I told her not to throw one but follow me to the front yard, she asked me stiffly, "Where are we going?"   So simple.  So new.  She's NEVER asked me that question before, ever.  Who knows what to attribute it to -- just making a record here. 

 

This morning, my husband and I found her on the couch, reading a book.  It's been a long time since she's done that on her own. When she was little she used to "stim" by flipping back and forth through a book's pages, but today, she was reading aloud.  WOW.  Again, dunno why, just noting.  

 

Stay tuned...

 

 

Diflucan update 1

Alexi's been taking Diflucan for 2 weeks and 3 days.  We were told to expect possible yeast die-off reactions - anything from irritation to extreme behaviors.  Well, happy to report, she is tolerating it very, very well.  Since starting the anti-fungal treatment, she had a blood test which had results come back normal demonstrating her insides are tolerating the yeast removal just fine.  Also, since her start, her ionic foot baths have additional yeast clumps  (gross) which means it IS in fact dying and coming out of her body.  So strange, I know... 

 

Behavioral improvements (if she will have any)  are not to be expected until after the first month of taking Diflucan.  She has had some cool new things happen in last 2 weeks however, so I will share them here. 

 

1. She usually sits in the store cart while her sister shops around.  At Marshall's last week - I placed our cart next to a mirror so Alexi could make faces at herself while we shoe shopped around, as per usual.  This time, Alexi noticed something on her skin and got super irritated about it - THIS is totally out of her normal - she normally doesn't really seem to see herself in the mirror much.  She started getting extremely upset and said, "Take it off eye!  Take off please!!!!!!!!!!!!!!!!!!!!!" She worked herself up into a sad mess with a runny nose.  Very hard to deal with in the middle of the store - as you can imagine with shoppers staring and wondering WTF?  But we got through it - and not surprisingly she could care less about that blemish now - but in that moment she had an awareness about how she looked she's never shown before.  And yes, we did succeed in getting shoes for her sister, in case you were wondering.... :)

 

2.  We are STILL having much success with nightly QiGong massage...  She'll go from WIRED and hyper to calm, yawning and ready for bed within 15 minutes -- most nights....  We were warned to have Melatonin on hand (see previous posts for more about Melatonin) during the Diflucan anti-fungal treatment, just to soothe her to sleep as sleep disturbances can occur during anti-fungal treatment.  One night - several nights ago - I heard Alexi making noise in her room, after having had massage and been tucked in.  I was waiting to go in and ignoring the noises hoping she'd calm soon - but didn't know her sister went in to check on her - Alexi told her " want white vitamins please!" and Kyra ran down to tell us about this first-time ever language.  We never referred to Melatonin as "white vitamins".  Alexi knew she needed it to sleep - told it to us - and she slept soon after having it that night.  Since that night, she has not asked for Melatonin every night as we thought she might.

 

 Another interesting note - we often spin her - as a way to reset her before bed.  We have a net swing (see link below) in our basement attached to the ceiling beam.  If Qi Gong doesn't work, often we'll ask if she "needs spinning" and she'll often say yes like she did last night.  We go downstairs, she spins for a short time then offers, "Alexi bed... time for bed" and she goes up - puts herself to bed, and last night - she slept the whole night - no Melatonin. 

https://www.especialneeds.com/therapy-net-swing.html?gclid=CjwKEAjw2PK7BRDPz5nDh9GjoGcSJAAybcS3OsDJR3FOvw67dbjqJCa1Db5H9bltCUij6l-djvI0xBoCUNfw_wcB

 

Life with Autism is all about figuring out what works and doesn't work - for that child. No amount of studies, proof, analysis in the world can prove to me what will work with our child and her particular brand of Autism.  I have heard that they should call Autism -- AUTISMS -- plural.  Because every child with Autism is so unique, each having their own brand of issues and needs and wants and struggles and successes.  The puzzle visual associated with Autism is a fitting representation of this disability - because it takes so much trial and error. 

 

More to come soon about yeast removal updates!  

Diflucan

Since last fall 2015, we have researched and researched and researched, asked opinions of many, read blogs, asked around at support group meetings and now............  we have offically started Alexi on an anti-fungal treatment with her Doc's approval/script!  It's called DIFLUCAN and we started yesterday 6.20 Father's Day!   I will track any changes here...  Stay tuned!  And wish us luck!  

 

?? OK - for those of you who are wondering -- What is Diflucan?  

Ok - Diflucan removes the yeast overgrowth so common in Autistic children - the yeast (Candida) overgrowth can present with behaviors like hand flapping and obsessions...  in other words - commonly recognised autistic behaviors.  

 

?? Well - how does that yeast overgrow in the first place and why doesn't everyone have overgrowth?  

From our research - it seems that the body creates the yeast in the first place as a natural and protective barrier against metals trapped in the body's tissue.  Candida yeast feeds on -- guess what? -- SUGAR AND CARBS!!!!   The metals are "trapped" in the tissue of an autistic individual because their bodies are somewhat compromised from early on.  Their bodies seem to have an issue with IMMUNITY.  Either too much or too little.  Either they have rashes, ear infections, are sick all the time, allergies OR... in Alexi's case, an OVERACTIVE immune system...  

 

She was weak at birth, had jaundice (couldn't flush bilirubin) and required a hospital stay under lights to help her.  Then at 7 weeks, she caught a cold and developed RSV and was hospitalized because she couldn't kick the cold herself.  THAT, looking back, was a huge indicator that her system was weak and needed extra time to develop...  What she didn't need were shots of poison pushed into her system -- those could have waited....  Oh, how I wish we had insisted on waiting instead of complying with her then doctor's vaccine recommendation, until she was 7 years old and stronger.....  (see link for more:  https://www.youtube.com/watch?v=tvcdh7KlgPI

 

There's no way to know now, of course, and we are not anti-vaxxers... by any means... but if we had put them off - her compromised body might have caught up and gotten stronger first... there's no telling what our situation might be today if we had waited...

 

But something did change in her, after those shots - it's almost like they propelled her system into FLIGHT OR FIGHT mode that she remains in to this day.  After having them, her body was never the same... From that point on she was rarely sick or recovered super-quickly.  If her sister got a stomach bug and she caught it, she would only suffer for 1/2 the time. We didn't know all this right away, it took years to uncover, but gone was that baby who was weakened, now we had a daughter who played on her own who was "no trouble at all" to babysit because she didn't need anything, didn't need attention, didn't want or need anything it seemed... easy peasy...  But - the crying ----  she was extremely hard to soothe, cried incessantly (many of you will remember)...  she was so hard to calm down, so hard to get to sleep through the night - for hours and hours at a time all that crying.  She just seemed so sad.  Was her gut in pain?  We don't know.  The hardest part to deal with?  There was no looking into mom or dad's eyes with love or smiles really.... no real connection to us... 

 

?? Why couldn't her now super-immune body flush the metals then? 

Well - she doesn't sweat and cannot flush them herself.  Many autistic kids don't sweat as many have muscle weakness and their systems don't get overheated.  Her body cannot naturally get rid of the build up from these metals from shots, metals breathed in from the environment, she has a hard time ridding herself of any toxins in her food, from our cleaning products in her environment.....  

 

So ultimately, her body's method of protecting her (yeast) has overgrown which prevents her from sitting still and being able to focus and attend... from what I've learned this yeast jerks her body around and makes her uncomfortable.  So - we TAKE out the metals - thru her feet!  See IONIC FOOT BATH previous post!  Also, there are other methods too to remove metals - infrared sauna (make her sweat them out), Zeolite products help draw them out, there's Chelation products....  So we have options....  

 

?? Will yeast be gone forever and will she be normal afterwards?  

From what our foot bath practitioner advises us - Alexi's body will NEVER flush metals normally...  And the body will keep on creating protection and make MORE yeast... always...  For whatever reason.  But that's the theory....  So what do we do?  After we BLAST this Candida yeast overgrowth with this round of Diflucan, we keep it at bay with natural methods -- Oil of Oregano, Garlic extract, Biotin, among others (see link below for more...)

 

www.tacanow.org/family-resources/what-is-yeast-overgrowth

 

Withdrawal from SUGAR AND CARBS that her body craves as a result of having this yeast inside is not  going to be easy. However, from all reports, once you get past the first week or so, and as the bulk of this yeast dies off, things get a bit easier.  We will forever be limiting sugar and carbs for our daughter and controlling these metals and this yeast as we go forward...  

 

I know - this seems CRAZY....     But then, think for a moment, think about what your body is craving these days...  Sugar, Carbs?  Then think about how your body feels when you get past that magical 3rd day of eating HEALTHILY by cutting sugar and carbs...  Do you start to feel more focused with less brain fog?  Do you start to feel more energized?  Does your body get past that craving stage as you get more and more healthy?  There so are many autistic kids I have met whose parents say they ONLY EAT white food - do you know of any?  Parents will often lament something like, "No matter what I try, he only eats waffles and pancakes, he won't eat anything else..."  

And -- what's up with all those within the past few years it seems TV ads for PROBIOTICS?  Remember Jamie Lee Curtis and her ads for "Activia" yogurt and we were all wondering what she was talking about?  And then that product was joined by more and more and more probiotics...  Now EVERYONE seems to suggest them for bloating and stomach issues... Just why does our whole country need PROBIOTICS all of a sudden?  A whole new product to market...  and why is there so much CRAVING going on?  Why is everyone addicted, YES ADDICTED to carbs and sugar?  Why is there so much obesity?  Now imagine for a second if you couldn't flush all the crap you put into your body yourself?  The bodies eating our American diet are struggling enough,  but those bodies with compromised systems have an even harder time flushing the complete onslaught of all this crap...  sigh....  

 

Does it sound crazy anymore?  I'd bet not. With the amount of people we need to feed and water on the planet, it's only natural that the people in charge of feeding us look for shortcuts...  shortcuts like antibiotics in the animals, like pesticides in our crops, like throwing some chlorine in the water, like WOW the amount of UNNATURAL things going on with our food supply is daunting.  PAIR THAT onslaught of toxins with a body who is weak at birth - and add some more toxins - then live near an airport...  Add a bit of Doritos, some Fritos, some chemically-processed breads, cereals, some preservatives, some food coloring....  I'm just saying... it's not all that crazy.  

 

Now - add FULL MOON issues to this mix -- if you have an autistic child - you MAY notice they are often WIRED and SLEEPLESS during a full moon -- take a look at THIS BLOG for even MORE information about YEAST issues:  

 

http://ourcrazyadventuresinautismland.com/why-a-full-moon-affects-children-with-autism/

 

I will blog often next couple weeks on Alexi's progress...

Pls Cross your Fingers for us...  as we continue along this journey....  

 

Melatonin

A quickie...

 

We've had SO MUCH success with helping Alexi get sleepy using QiGong massage over the past few months -- we have rarely had to resort to using Melatonin!  

However, last night, even though she got her massage, she got some pre-bed spinning in her basement swing (always helps to regulate her system and calm her), and even though she had a foot bath that day which always helps as well... she still was irritated and wired most of the evening - lots of repeating and restlessness...  She definitely had a hard time falling asleep...  happens to the best of us, right? 

Well, we heard the familiar-sounding THWUMP on her bed after she had gone up to bed last night and we knew we had to wait it out for a bit to see if she could get herself to sleep - but last night Kyra decided to go up and give her sister a cuddle... 

Kyra called down to us excitedly "She asked for melatonin!" and Pat and I both ran up -- Kyra said, "Alexi, tell mom and dad what you just told me" and Alexi said "White vitamins please".....  and when I asked her if she wanted one or two, she said 2...

This was the FIRST TIME Alexi told us she needed Melatonin to sleep - admitted it to herself and to us - and we were blown away...  

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